Publikationer

Farič N, Scherrens AL, Raemdonck E, Beernaert K, Cresswell K, Jacobs A, Lundeby T, Pardon K, Williams R, Van Landschoot F, de Vos-Geelen J, Ausen D, Urrizola A, Hjermstad MJ, Kaasa S, Fallon M, Deliens L; MyPath consortium. Adaptation of digital integration of PROMs and PREMs in oncology during implementation: a scoping review. Support Care Cancer. 2026 Mar 13;34(4):316. doi: 10.1007/s00520-026-10509-0. PMID: 41824067; PMCID: PMC12987908.
Elias David Lundereng, Alen Brkic, Ph.D.; Marie Fallon, Ph.D.; Kathrin Cresswell, Ph.D.; Luc Deliens, Ph.D.; Koen Pardon, Ph.D.; Kim Beernaert, Ph.D.; Anne-Lore Scherrens, Ph.D.; Dag Ausen, Ph.D.; Morten Andresen, M.Sc.; Guro Meldre Pedersen, Ph.D.; Camilla Lykke, Ph.D.; Augusto Caraceni, Ph.D.; Andres Cervantes, Ph.D.; Nicoleta Mitrea, Ph.D.; Steven Olde Damink, Ph.D.; Marianne Jensen Hjermstad, Ph.D.; Stein Kaasa, Ph.D.; Tonje Lundeby, Ph.D. Opportunities and Challenges in Implementing Digital Patient-Centred Cancer Care in Europe – A Qualitative Study of several ESMO Designated Centres (accepted in ESMO Real World Data and Digital Oncology, February 27, 2026).
Lundereng ED, Brkic A, Absolom K, et al., Balancing ideals and realities: health care professionals’ perspectives of and attitudes toward digital patient-centered cancer care. Qual Life Res. 2026 Feb 18;35(3):76. https://pubmed.ncbi.nlm.nih.gov/41709015/
Sannerum K, Buur LE, Lykke C, Nissen TN, Nielsen MK, Larsen SH, Neergaard MA. Advance Care Planning til børn og unge med livstruende eller livsbegrænsende sygdom. Ugeskrift for Læger 2025;187:V05250390. doi: 10.61409/V05250390
Pedersen T, Groenvold M, Lykke C, Løkke A, Barna EN, Lindström Egholm C, Mikkelsen TB, Raunkiaer M, Shabnam J, Hansen M. B. Comparing patient reported palliative symptoms and problems among kidney, heart, lung and cancer patients – An initial investigation. Progress in Palliative Care, 2025 Aug 02. 1 -11.
Shabnam J, Raunkiær M, Hansen MB, Grønvold M, Løkke A, Barna EN, Lykke C, Mikkelsen TB, Egholm CL. Patients’ experiences of responding to a Patient-Reported Outcome Measure for palliative care: a mixed method study. Qual Life Res. 2025 Sep;34(9):2651-2662. doi: 10.1007/s11136-025-04006-w. Epub 2025 Jun 14. PMID: 40515799; PMCID: PMC12432079.
Helledie E, Marsaa K, Lyngstroem T, Groenvold M, Sjoegren P, Nottelmann L, Andersen TS, Hygum A, Paerregaard J, Hoest DL, Nielsen HA, Hallas MK, Higginson IJ, Neergaard MA. Development of a national strategy for palliative care. Dan Med J. 2025 May 21;72(6):A12240872. doi: 10.61409/A12240872. PMID: 40557863.
Lykke C, Jurlander B, Sjøgren P, Kurita GP, Zwisler AD, Høyer LV, Tønder N, Larsen S, Eidemak I, Ekholm O. Caregivers’ impact in heart failure: a cross-sectional study. BMJ Support Palliat Care. 2025 May 9. Epub ahead of print. https://pubmed.ncbi.nlm.nih.gov/40345849/
Hellmann SS, Vaegter HB, Handberg G, Petersen PL, Kurita GP, Sjøgren P, Thygesen LC, Ekholm O. Associations of Graded Chronic Non-Cancer Pain Severity With Well-Being and Modifiable Lifestyle Behaviour: Findings From a Danish Population-Based Cross-Sectional Survey. Eur J Pain. 2025 Nov;29(10):e70138. doi: 10.1002/ejp.70138. PMID: 41054870; PMCID: PMC12501817.

Abstracts

Lykke C, Nissen TN, Hertel T, Mortensen SJ, Jensen CH, Kjær GH, Friis C, Neergaard MA. Quality indicators for children and adolescents with life-threatening or life–limiting diseases: A systematic review. 20th World Congress of the European Association for Palliative Care, Czechia, Prague (Accepteret printet poster May 2026).
Von Rotz C, Dittmann IT, Nielsen LM, Neergaard MA, Kurita GP, Petersen NL, Aasvang EK, Lykke C. Exploring clinical-academic integration in hospice-care: focus group findings from St. Luke’s Hospice. 20th World Congress of the European Association for Palliative Care, Czechia, Prague (Accepteret printet poster May 2026).
Von Rotz C, Ekholm O, Lykke C, Petersen NL, Aasvang EK, Neergaard MA, Grønvold M, Zwisler Ann-Dorthe, Kurita GP. Opioid Prescription Trends in End-of-Life Care: A Cohort Analysis of Patients with Cancer (2012-2023). 20th World Congress of the European Association for Palliative Care, Czechia, Prague (Accepteret printet poster May 2026).
Lykke C, Petersen NL, von Heymann A, Sjøgren P, Larsen H, Mathiesen UB, Larsen D,Johansen DT, Guldin M, Tange U, Lundbye T, Gyldenvang HH, Kurita GP. Specialized palliative telemedicine for patients with advanced cancer – Part 1: Feasibility and Patient- Reported Outcomes from a Pilot Study. 20th World Congress of the European Association for Palliative Care, Czechia, Prague (Accepteret printet poster May 2026).
Petersen NL, Lykke C, von Heymann A, Sjøgren P, Larsen H, Mathiesen UB, Larsen D, Johansen DT, Guldin M, Tange U, Lundbye T, Gyldenvang HH, Kurita GP. Specialized palliative telemedicine for patients with advanced cancer – Part 2: dyadic coping, caregiver burden and health-related quality of life. 20th World Congress of the European Association for Palliative Care, Czechia, Prague (Accepteret printet poster May 2026).
Petersen NL, Lykke C, von Heymann A, Sjøgren P, Larsen H, Mathiesen UB, Larsen D, Johansen DT, Guldin M, Tange U, Lundbye T, Gyldenvang HH, Kurita GP.Specialized palliative telemedicine for patients with advanced cancer – Part 3: Insights from patients, caregivers and healthcare professionals. 20th World Congress of the European Association for Palliative Care, Czechia, Prague (Accepteret printet poster May 2026).
von Rotz C, Ekholm O, Lykke C, Petersen N, Aasvang EK, Neergaard MA, Grønvold M, Zwisler AD, Kurita GP. Opioid Prescription Trends in End-of-Life Care: A Cohort Analysis of Patients with Cancer: Study Protocol. 14th International Seminar of the European Palliative Care Research Centre, Oslo, Norge (Accepteret printet poster sept 2025).
Lykke C, Petersen N, von Heymann A, Sjøgren P, Larsen H, Mathiesen UB, Larsen D, Johansen DT, Guldin MB, Tange U, Lundbye T, Gyldenvang HH, Kurita GP. Specialized palliative telemedicine for patients with advanced cancer at home: results of a pilot study. 14th International Seminar of the European Palliative Care Research Centre, Oslo, Norge (Accepteret oral presentation sept 2025).
Róin T, Jurlander B, Juhl GI, Dieperink KB, Sjøgren P, Bergenholtz H, Zwisler AD, Kurita GP, Larsen S, Tønder N, Høyer LV, Lykke C. Taking a Stand, Ready or Not: Navigating Sensitive End-of-Life Care Conversations in Patients with End-Stage Heart Failure. 19th World Congress of the European Association for Palliative Care, Helsinki, Finland (accepteret oral præsentation maj 2025).
Warrington L; Urrizola A; Rogiers A; Absolom K; Velikova C; Lykke C; Lindblad MKE; Larson D; Kurita GP; van Ryckeghem D; Fallon M; Kaasa S. A Digital Patient-Centred Care Pathway to Assess and Manage Emotional and Social Distress in Routine Oncology Care. European Association of Palliative Care (EAPC), Finland (Accepteret printet poster maj 2025).
Lykke C, Petersen NL, von Heymann A, Sjøgren P, Larsen H, Mathiesen UB, Larsen D, Johansen DT, Guldin MB, Tange U, Gyldenvang HH, Kurita GP. Evaluating telemedicine- integrated specialized palliative care: recruitment and implementation challenges in a pilot RCT, European Association of Palliative Care (EAPC), Finland (Accepteret som 2-minuters pitch under poster diskussions sessionen maj 2025).
Lykke C, Jurlander B, Sjøgren P, Kurita GK, Zwisler AD, Juhl GI, Høyer LV, Tønder N, Larsen S, Eidemak I, Ekholm O. Exploring the impact of caring on caregivers of patients with heart failure. European Association of Palliative Care (EAPC), Finland (Accepteret printet poster maj 2025).
Kero J, Holmen H, Castor C, Birgisdóttir D, Lykke C, Lövgren M, Neergaard MA, Grönroos M, Kristinsdóttir O, Pétursdóttir AB, Winger A. The Establishment of the Nordic Network for Research and Development in Children and Young Adults’ Palliative care, the Young- NORDIC-Pal., European Association of Palliative Care (EAPC), Finland (Accepteret printet poster maj 2025).